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We're currently closed.Open Today 10am - 6pm
Clearwater Marine Aquarium

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Blog & News

Bernadette Scarduzio

Inspiration Updated May 6, 2020 Posted November 4, 2016

Inspirational kids meeting dolphin

Bernadette Scarduzio was born with the most common inherited disease that no one has ever heard of: Charcot Marie Tooth (CMT) syndrome. CMT is the number one hereditary neuropathy in the world, affecting 1 in 2,500 people or nearly 2.6 million worldwide. It is a degenerative nerve and muscle disorder which leads the body to deteriorate over time. Sometimes the progression is slow. Sometimes it is rapid. In some cases, it is fatal. There is no cure. It is passed from parent to child and, too often, it is perceived as an embarrassing family secret, as it was in Bernadette’s family.

Filmmaker Josh Taub documents the physical decline of a young woman in her prime. During the course of the film, Bernadette goes from engaging in sports to depending on a scooter and assistance with the daily necessities of life. When her father, who shared the disease, suddenly passes away, Bernadette resolves to raise herself from suffering in obscurity to become ‘the face’ of CMT.

Bernadette’s indomitable spirit charges the film and demonstrates that the right attitude can overcome the most difficult obstacles. – See more at: bernadettecmtmovie.com


Winter’s story has inspired millions of people all over the world! Read more inspirational stories.

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We believe in preserving our environment while inspiring the human spirit through leadership in the rescue, rehabilitation, and release of marine life; environmental education; research; and conservation.
We are a non-profit 501(c)(3) organization.

Clearwater Marine Aquarium
249 Windward Passage
Clearwater, FL 33767
727-441-1790

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A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION FOR CLEARWATER MARINE AQUARIUM, A FL-BASED NONPROFIT CORPORATION (REGISTRATION NO. CH352), MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE 1-800-435-7352 WITHIN THE STATE OR BY VISITING www.800helpfla.com. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. Federal Tax ID#: 59-2086737.

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